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Post Info TOPIC: More hurricane relief efforts


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More hurricane relief efforts


Okay, time for me to do my plug. As many of you know, I work for the Children's Organ Transplant Association. We provide fundraising assistance to children and young adults in need of life-saving transplants. We also work with adults with genetic disorders (usually diagnosed at birth or a young age, but they don't need the transplant until later in life). (The most common transplant-related genetic disorder is Cystic Fibrosis.) We have patients all over the U.S., including Louisiana and Mississippi. In our current campaigns (for patients who still need money), we have an adult in Thibodeaux, LA, not far from New Orleans who has received a double lung transplant. His name is Curt Faucheaux. The last thing we heard is that he is safe in his own, still standing, not flooded home. His campaign coordinator (the main volunteer) is a fireman, and is helping with the relief efforts in New Orleans. He has been busy, as the power is being turned back on, it is starting fires in addition to all the work on the relief efforts.

On Monday, August 29th, I received a patient agreement in the mail from the family of Dennis Estroso from D'Iberville, MS, just north of Biloxi. The volunteers the family has selected for their campaign are from Gulfport and Biloxi. We have not heard from this family or their volunteers. We have done our best to make them aware that we are there for them when they are ready, and we eagerly await their response. You can see Dennis by going to COTA.org, selecting Patient Campaigns, and choosing Dennis from the list (alphabetical by first name, or you can search).

COTA is a national 501c3 charity, and 100% of funds raised go towards transplant related expenses; we do not charge any fees or take any portion of the donation for operating costs. Many people have problems with other charities because they do take a portion of each donation. As I said above, Curt is fine, and we do not know what Dennis' current situation is, but if you are still unsure where to give, I want to make sure everyone is aware of this option.

Okay, stepping down now.

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CP


Lord of the Lair

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mz, i am embarassed that i did not think of you before i donated.  I gave to the red cross.

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That's fine, CP. Like I said, the patient that may need help is new, and I don't know if he needs help with hurricane related stuff or not. Most of our patients were not affected by the hurricane, their need is ongoing.

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Mz I didn't know your charity helped older people too- especially in the case of cystic fibrosis. My friend tom's daughter died of that at age 21 last year. that is such a terrible disease. Believe you me, if I had money, I would surely donate to your charity!

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Most of our adult patients have Cystic Fibrosis. Most of them do well after a double lung transplant. But getting the transplant itself is the hardest part. Just remember, it doesn't take any money to be an organ donor.

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Grand Poobah

    



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that is true. She wasn't able to get a transplant. I hear you on organ donation. The best gift you can leave behind is yourself!

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"And like Web, I enjoy throwing JR under the bus.  Problem is, it's usually under the special bus that I ride every day". Ghostdancer 12-18-09
CP


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actually, i watched a csi show today--i thought that i should go in and be a bone marrow donor.

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CP


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confession and i am sure it is the jd talking and will regret this later.  one of the reasons i thought about being a bone marrow donor is that I tested positieve for antinuclear antibodies--which means a likelyhood of cancer--but it could also be lyme diesease or something else.  crap too much to drink tonight, I am going to regret this confession.  It means that they are testing me for cancer.   I want to help other people and consider myself selfish for not considering doing so.  I have also had a fifth of jd tonight and need to rethink everyitning in the moringin.

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That's a great idea, CP! You can find out more information on how, and what happens to your marrow, on http://www.marrow.org/

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Well, CP, you're not alone, I've been there. At one point, I was at high risk for cervical cancer. Since then, I've had part of my cervix removed (hence, one of the big reasons I'm not having kids), and the rick is now low. But it's not gone.

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My theory is that I do not need my organs after I am gone and if the can help someone or five someones, so be it. The only thing I asked is they sew me up nicely when they are finished.

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