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Post Info TOPIC: Pambo Update
Mad Mema


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I just got off the phone with Pambo's husband.  She is out of surgery and in the recovery room. It will probably be an hour before he gets to see her.  Apparently the doctor had a little trouble getting the needle to go exactly where he wanted it, but did manage to get the job done. He says he will call me back later when he knows more about how she is feeling. 


I can't imagine I'd be all extra happy if someone stuck a big ol' needle in my cheek and inflated a balloon in a hole in my skull... but that's just me.



-- Edited by Mad Mema at 15:06, 2006-06-06

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MM

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JD The Jazz Doctor


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oh man! thanks for the update!

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Molly


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Mad Mema wrote:

I can't imagine I'd be all extra happy if someone stuck a big ol' needle in my cheek and inflated a balloon hole in my skull... but that's just me.


Can't imagine I would be either. But if it makes her feel better, then it's definately worth it.

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Woo Hoo


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I hope it all works out for the best! But owwwwey!

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Ruby


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Horrible visual! Thanks for the update- hope her hubby is doing good too!

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Jeremy Riggs


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Thank you for updating us Mema. I'm hoping that all turns out well.

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jstdve


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 musta missed something somewhere , knew she was having pain from a nerve in her cheek ,  can you elaborate ?


  Hope she feels better .


 



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dave
Mad Mema


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She has been suffering from Trigeminal Neuralgia for the last 2 years.  As a result, she has been on a variety of medications to attempt to relieve the pain, some of which have had some nasty side effects.  There were several horrible months when she was taking prednisone (sp?) which made her extremely emotional, like crying all the time for no real reason. Most of the meds make her very drowsy, so she tends to spend most of her free time sleeping. She has also become very light sensitive, therefore she has been wearing sunglasses all of the time for most of the last 2 years.


The doctors finally decided that they have exhausted all of the non-surgical options for alleviating her pain. Today, she underwent a procedure called "balloon compression" where a balloon was inserted into the opening in the skull where the nerve comes through and inflated to the point where it compresses and therefore damages the offending nerve. About 95% of the time, this causes the pain to stop immediately. The doctor apparently told her husband that she is to immediately cease taking the meds they have had her on.  That bothers me a bit as I think they should probably taper her off of them, but it's not my call.


If you want some creepy reading, Google on Trigeminal Neuralgia.  It will make you hurt just reading it.  AKA "the suicide disease"  because that is how most people have resolved their pain.  It is apparently what 2/3 of Dr. Kevorkian's patients had.



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Mad Mema


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Richard just called again.  Pambo has been released from the hospital and they are now on their way home.  Alas they are just about to hit rush hour traffic in the most vile location in all of Missouri... the Grandview Triangle. No, I'm not making that up... it really is called the Grandview Triangle. It's a lesser version of the Bermuda Triangle... it only disappears cars and trucks... no boats or airplanes. But I digress...


So far the results seem positive. Pambo says she feels less pain already.



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Ruby


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Cool! Glad to hear that. I can't believe what we do as outpatient things nowadays. That is ridiculous not to keep her at least over night. And I agree that the meds might need to be tapered. Hope all continues to go well!

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jstdve


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 Holy Shomly and guacamoli !  The most unreal thing I never heard of .  How that girl was able to function at all is a story in itself .  It sure 'splains her love for her  shades and her sleeping the weekends.


  I sure hope she's in the 95% cure part.  Give her my luv ( and I'm sure all here ) and hope to see her on the boards soon .


    Dave



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dave
Mad Mema


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Yeah, it's been rough on her. That is exactly why the shades all the time and the narcoleptic weekends. I really hope it works out too.  I miss getting to spend time with her after work and on the weekends.


I will definitely pass along the luv. I know she appreciates it.



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JD The Jazz Doctor


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yep! what dave said!

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Mad Mema


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I just got the latest from Pambo's daughter.  Apparently as of this morning, Pambo is shades free and her trigeminal nerve is not hurting. Suz says Pambo is "... not at work today because she is talking like the kid from Big Daddy." I guess Suz is having fun with that... made Pambo say "thowty packets of ketchup pwease".  I told her she is mean... then again, I'd have done the same thing. 



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JD The Jazz Doctor


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hey thats great!

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Lady Strange


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Please give her our best.

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Molly


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That's wonderful news!

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Ruby


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Woo hoo- glad to hear that! I will continue to pray!

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Dylan


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Mema, tell her I am glad she is feeling better.

I weely weely do

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thumperglh


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Mad Mema wrote:

I just got the latest from Pambo's daughter.  Apparently as of this morning, Pambo is shades free and her trigeminal nerve is not hurting. Suz says Pambo is "... not at work today because she is talking like the kid from Big Daddy." I guess Suz is having fun with that... made Pambo say "thowty packets of ketchup pwease".  I told her she is mean... then again, I'd have done the same thing. 
Sad to Say Mema but I probably would have joined you in that respect.  We are not mean JUst wonderful people who enjoy playing it up

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WebGuy


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I sure hope the initial results continue to get better and she can hurt no more. Its amazing how far medical procedures have come.



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Mad Mema


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I had a long text message conversation with Pambo last night.  She said she was not doing as well as Suz advertized.  Says she has a lot of swelling, can't chew, and can't speak well.  She said she would have her son call the doctor for her today if it wasn't better.  I have yet to talk to her today, but she isn't in the office so I gather she's still not in top form. I'll get ahold of her tonight.

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Woo Hoo


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Mad Mema


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Don't be too discouraged.  Given the nature of the procedure, I really did expect her to have some swelling and discomfort.  Can't imagine it wouldn't have it's share of discomfort involved. It surprised me that the Dr. told her to immediately discontinue all of the meds she was on before.  I'm sure the sudden stop would probably make her feel a bit hinky too.


Pambo specifically told me to not worry too much about her.  Granted that is like telling me to not breathe, but I think she figures that the day after is always the worst.



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In my prayers!



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thumperglh


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here you go Pambo. here is the luv we sent ya.

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Pambo


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Too sweet!

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WebGuy


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I hope you are feeling better, Pam.



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Pambo


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Thanks, sir.  I've had my moments. 

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Woo Hoo


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How ya feeling?

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